my doctor is so hesitant to call it that. Is there a reason why doctors try not like to use the term Lupus?
Answer:
he is hesitant to call it lupus because its not exactly lupus. MCTD combines features of polymyositis, systemic lupus erythematosus and systemic scleroderma and is therefore considered an overlap syndrome.
Well, Lupus is an autoimmune disease. That basically means that your immune system doesn't recognize various parts of your body and thinks they're foreign substances. Then the immune system begins to attack these areas. Basically, your body is turning on itself. With Lupus, it's not just a specific tissue that is affected. It can be various organs in the body and has a laundry-list of symptoms. be happy you DON'T have Lupus.
From my understanding the classify Lupus on a certain ANA level (found in a blood test).
Have you thought of going to an immunologist?
An experienced rheumatologist should make the diagnosis. You are diagnosed with lupus it you meet the 11 criteria of the American College of Rheumatology and other conditions have been ruled out. Some of the criteria carry more weight than others in making the diagnosis.There is NO DEFINITIVE lab test for lupus. The ANA or antinuclear antibody test can be negative in a person with lupus and positive in people without lupus. Additionally, the ANA will change with the level of disease activity. I have systemic lupus with major organ involvement. It is not the end of the world. Yes, it's a challenge. Yes, some people do die from lupus complications but the vast majority will live a normal lifespan if they have regular medical monitoring and follow their treatment regimen. 1. Gather up your medical records
2. Ask for a referral to a rheumatologist
3. Educate yourself
4. Do not try to tell the doctor your self-diagnosis, but let him/her do the job you are paying them to do.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment